A mission born out of despair and fueled by hope.
When we lost Jordyn, everything felt wrong... and it still does. Our beautiful, smart, funny daughter was one of the brightest parts of our lives and she had just begun to live her life. She was 13.
The diagnosis... Leukemia... didn’t phase us. She was strong and positive and optimistic and she brought that out in us. We were going to have a few rough months and she was going to have a lot more time on her hands, she was one of the busiest 13 year olds after all, but it was all going to be fine.
Then everything started to go wrong. It seemed like we were celebrating small wins like getting out of bed and her wanting to have visitors while the doctors kept giving us terrible news. And she was so strong. She knew she’d be fine and so we knew she would be fine.
Until it wasn’t fine. She developed an infection that quickly spread. The chemotherapy treatment meant to target the Leukemia affected much of her body and she was just too weak to fight the infection. Her immune system was gone. Wednesday, October 10, 2018 after only 20 days since she was admitted to the hospital, her body stopped fighting and our little girl left us. We have been forever altered and miss her more and more every day.
The intention of 33 JordynStrong is that we both honor her memory and find a way to help families going through the things we went through. The diagnosis doesn’t just happen to the child who is sick... and no one should have to experience what we have gone through. But we know they will... and it is our wish that they have someone to help them walk the path. Jordyn would have... she was the strongest person we have ever met and she was so wise beyond her years. She had an understanding for compassion that was so mature and she had a knack for making people smile - knowing just what to say...
The intent is that we will raise money for doctors and researchers looking for alternative treatments for Leukemia, scholarships for kids like Jordyn, and grants for families who find themselves devastated from a loss like ours.
We know it is early and we know we aren’t ready for this... but we also know we need to do this and in doing so, it brings us a little closer to her.
She is the driving force for why I have done everything I have done over the last 13 years and it is my intention to let her drive me for the rest of my life. She is my best friend. She is my whole world... and if I can’t physically be with her, I want to be as close as I can get.